Well Andrew got his PICC line pulled yesterday. This is good, bad and exciting. The good part is that lines are always an infection risk, the bad is that he will need to get his blood drawn the normal way on tuesday, which is painful, and the excited is that our little Andrew is line free. Other than a lot of scars and bruises, he looks like a normal boy!!!
The first night home we expected to get no sleep. The second night home we were hoping for at least a little sleep. Didn't happen. Andrew was sweating really badly with no fever. We couldn't figure out why. After talking to an ICS NP we were told to just monitor him. Then he started gasping. The gasping continued even after we had gotten him to sleep (it took from about 8pm to 12:30 to get him to sleep). We figured it was due to pain, rather than not breathing well. Just to make sure the ICS fellow on call told us to go to the emergency room. So Andrew and I hung out in the ER until about 3:30 in the morning. They prescribed him oxycodone and we went home. Soon after we got home Andrew fell asleep and slept well until about 10am... without pain killers. Hopefully it was just a little thing that affected him for a few hours.
We are so grateful for his progress, but know that the road to a good night's sleep will be long. I hope he will soon be off all the meds and that his own body will be able to take over. So glad to see him and his eternally quick smile on Skype! We love you and continue to pray daily, even hourly, for all of you!
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