Andrew was diagnosed with Erythroid (M6) Acute Myeloid Leukemia on November 4th, 2010 when he was almost 5 months old. Andrew is currently in remission from his cancer, after finishing his 5 rounds of chemotherapy. He is a healthy, happy toddler.

Thursday, May 12, 2011

back on dilaudid

Andrew had a rough night last night. Lizzie said that all night, he would stand up in his crib and start to scream. When he tried to sleep he would breath erratically and be taking short gasps every breath. He had the exact same symptoms last round and dilaudid (hydromorphone) was the only thing that ended up helping with the pain. Lizzie tried giving him ativan, tylenol, and oxicodone. Finally, at 5:30 this morning she called me up and we switched places so that she could get some sleep. We had the resident come and assess him so that we could give him dilaudid. The resident assessed Andrew but said that she would like to wait until the nurse practitioner(NP) for the ICS unit came in to give Andrew dilaudid (being cautious I guess). Long story Andrew was able to eventually fall asleep on my chest but he didn't get dilaudid until about 8am. The NP said that she thinks that it might be mucositis. Basically, because he has very virtually no immune system right now, it is very easy for the throat to get inflamed. Sometimes babies will wheeze when they get it because they have such small airways.

On a kinda funny note, Murphy's Law type of funny. Last night about 1:30 in the morning the hose that connects our washing machine to the apartment's water blew off. I was just going to sleep and so I heard it from the bedroom. I ran into the kitchen only to find water jetting out of the washing machine hook up. I turned off the water and got it cleaned up by about 3am. Its not something that you normally laugh about, but you kind of have to when you are running on about 2 hours of sleep.


  1. Sounds like Murphy's law alright. Hopefully everyone will give you a break today and you can nap with Andrew. I know I'm very thankful for delaudid I pray it helps.

  2. Rough, rough times! I feel for your lack of sleep! So sorry about Andrew's pain. May he get through the worst of it soon. Love you all so much!