There were a lot of procedures today for our little munchkin. He's been pretty cranky today with no food and no nap, but now he's sleeping peacefully. We got a PA to do his procedures for us who came highly recommended (some doctors/PAs/NPs have better aim than others). For such a little guy, I wanted it done right the first time so he could just recover, and we could maximize our last few days at home. Something I learned from a mother who used to be here--as gracious as you want to be in letting people touch your child, it really should always be 'the child first and always.' We asked if we could be put in tomorrow to start round 4--but they're pretty booked upstairs--so for sure we'll be in this next Monday. I'm just now starting to get anxious to go back in.
It's so weird wanting to go back in for another round. I think of it almost literally as a boxing match where I get put in the ring for a fight, but I'm not allowed to punch back. I just have to endure it until it's over, then they take me out for a little break, and I get put back in for another round. It'll be nice when we can go home for good and be done with inpatient stays. We'll have to go to clinic for a long time after that--first every week, then every other week, then every month and so on until they call him "cured." It will also be nice when we can stop asking everyone that comes within 3 feet of Andrew their recent medical histories.
(one of my favorites pics of Stew and Andrew between rounds 2 & 3)
I LOVE this picture! He looks like a Japanese anime toy.
ReplyDeleteLizzie, I said it to you at the cancer mom's dinner, but I just have to say it again - Andrew is SO DARN CUTE!!! He is seriously the cutest baby. I just want to squeeze him! :) I hope things continue to go well (well, you know...) for him.
ReplyDeleteI was nodding my head at your comment from a couple of posts back about gearing up to endure another inpatient hospital stay and being thrown back and forth between the hospital and home. It is draining! Even though our scheduled inpatient stays are so much shorter than yours, I feel you! Even just in part, boy do I feel you! We just got admitted today for round 3. When we have gotten home from these last stays, I feel so bewildered - seriously like someone just threw me from the hospital back into my house and what on earth am I supposed to do now when I'm just headed back there in a week and a half?! Anyways! :)
I loved hearing all of your thoughts and knowledge about medicines and treatments at the dinner. I was telling my husband all about everything you told us. It was so interesting! :)