We talked to the bone marrow people for about an hour and a half today. This is a conversation I really didn't want to have, and it ended up being just about the most depressing conversation I've had in a while. They say any extramedullary involvement doesn't bode well for prognosis, which I knew, but I was gearing up for the next big bout of information in a few weeks. Like the oncology people, the bone marrow people are great, they're just people that I hope I never have to work with. It was a very informative talk, and I learned that even had I found a way to save Andrew's cord blood, they wouldn't use it.
We went down for an ultrasound today because Andrew's scrotum has swollen up a ton in the last day or two. At first we were worried it was his actual testicle (which his last ultrasound showed had increased in size), but it was getting big enough that we were pretty sure there was fluid. According to the radiologist, his testicle is .47 now rather than .8 somethings!!! (I was too excited to remember the units). This is a good sign. We knew his eye looked much better, but we had attributed a lot of that to the surgeon debulking his tumor during the biopsy of his eye. Maybe, just maybe he's responding well to chemotherapy.
Andrew's been such a good kid through all this. The nurses keep asking me, is he always this happy? I've seen him countless times during "tummy time" get up on his elbows and do a face-plant because he's so tired, but still with a huge gaping grin on his face.